Growing Up With Hemophilia: Physical Activity, Bone Health, Pain, School Participation, and Transition

Authors

  • Shaimaa Hashem Abd El-Aziz , Mervat Atfy Mohammed , Hosam Fathi El-Saadany , Ahmed Mohammed Barakah

Keywords:

Hemophilia; Physical activity; Bone health; Quality of life; Transition to adult care

Abstract

Background: Bleed prevention has transformed the prognosis of children with hemophilia, but normal childhood cannotbe inferred from a low bleeding rate alone. Physical inactivity, low bone mass, pain, school disruption, family overprotection, and difficulties during transition may persist even when hemostatic treatment is effective.

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References

Srivastava A, Santagostino E, Dougall A, et al. WFH Guidelines for the Management of Hemophilia, 3rd edition. Haemophilia.

;26(suppl 6):1-158.

Ruiz-Sáez A. Comprehensive care in hemophilia. Hematology. 2012;17(suppl 1):S141-S143

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Published

2024-03-20

How to Cite

Shaimaa Hashem Abd El-Aziz , Mervat Atfy Mohammed , Hosam Fathi El-Saadany , Ahmed Mohammed Barakah. (2024). Growing Up With Hemophilia: Physical Activity, Bone Health, Pain, School Participation, and Transition . Pegem Journal of Education and Instruction, 14(3), 1233–1241. Retrieved from https://www.pegegog.net/index.php/pegegog/article/view/5292

Issue

Vol. 14 No. 3 (2024): PEGEGOG

Section

Article

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